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My story begins on May 26 th 2001 when mum found out about my existence. It was the biggest gift that she could have dreamed of for Mother's Day. The months of awaiting began, until one frosty January morning I came to this world. The family was thrilled and I was given the name Maja - these are the first letters of my beloved parents' names: Marta & Jacek.
When I was 3 months old I went to hospital and there my parents learned that I'm not an ordinary child. I have a rare genetic disorder which is called "cri du chat". I will never forget my parents' tears and how devastated they were. The whole family was terrified. None of the doctors had been able to explain to my mother what it was all about. All they did was give a sentence - the child will have a serious psychomotor disorder.
I have a wonderful family!!! Of course it did take them some time to understand that our life has to change, that I demand more time, work, attention, that I do not develop at the same speed as other children do, that I am often ill. Now I'm two years, I have recently learned to sit!!! I try (though it does take a lot of effort) to crawl, the only word that I utter, practically all the time, is 'mommy'. It is unknown when I will start to walk, to talk. Nevertheless, everybody strongly believes in me, and I myself don't give up. I promise that I'm going to write about all my new achievements so that you will be able to be happy about them when you look at my page...

27 'th February 2004: I CAN CRAWL!!!

What's new...

A few months have passed.I am a happy, smiling girl. I am already three years old!

For a year I have been taking part in trainings of The Group of Early Development Support , I have a lot of friends there - some wonderful children: Patryk, Oliwka, Sandra, Mateusz, Kuba, another Patryk and Kuba, Daniel and fantastic ladies, who are taking care of us: Ewa, Danusia and my most favourite Ania.

I have a lot of interesting things to do there. Training with Piotr, the psychologist - twice a week, with logopedist Ania and physiotherapist Janusz.

I am learning to do a lot of interesting things: to draw, to build blocks ?, to recognize objects on pictures, to blow, I am also practising how to ­­­­­­­­­­­­­­­use the loo, and I learn to eat, to dress myself, and to do a lot of other things which sometimes I am not able to name.

I like to be at The Group of Early Development Support very much, there is always a lot of fun and something is always happening there.

I can't walk yet but I've learned to show what I need (not all everything yet - but Rome was not built in one day). I can articulate sounds of a horse, chicken, kitten and cow.

I can make my, my and I give sweet kisses if somebody asks me to - which completely disarms my Mum. I am giving my kisses also not asked - I need to express that I like somebody, that I am thankful, don't I?

I can show the toy I like to play with, I vividly react to my favourite fairytales - Pszczółka Maja and Teletubbies. I love bathing and on the sound of the word bathtub I start running to the bathroom at the speed of Formula 1.

You already know that I am an unusual child . my sleeping time is also unusual. I sleep about two hours during the day and my night sleep starts at about 2 AM. so it is with me. My Mum thinks she knows all about it: that no regulating can help - nothing can be forced on me.

I also have to tell you that in spite of what the doctor said communicating my diagnosis to Mum (claiming that I won't be able to eat food different than pulp and mince food) I can eat steaks and I am able to chew them thoroughly, I am doing it really well!!! Unfortunately I am often getting ill, it's surely caused by my low immunity. My appetite is not the best, which is shown by my weight - 10 kg - not too much for a three year old.

Achieving new skills costs me a lot of work and effort but the love of people who are around me gives me incredible power and will to surmount the obstacles and thus to make the impossible become possible.

Perhaps I won't be able to achieve certain things - but I have the worthiest thing in life - love, and I am sure that it will always be with me.